Nevada Chapter Support Groups
Our chapter is proud to offer monthly support groups statewide. Support group meetings can be an educational gathering, a safe place to express emotions, or a forum to share experiences and information. People with ALS, caregivers, family members, and friends are welcome to attend to give and take the wisdom and experience that comes from living with a devastating illness.
On learning of his ALS diagnosis and attending our Henderson support group, Brian said:
"After the full spectrum of emotions you would expect, I realized that I could basically either give up and withdraw or fight and make the most of the time I have left...The support groups not only help to show you're not alone but are a great place to get information that you might not otherwise easily find on your own. I think on the the reasons I'm still here going on 6 years is because I've had people to lean on including the ALS Association staff, as well as the people I've met a the support group. I know that dealing with this disease, even small things can be an ordeal, but I really do believe that you'll find attending the support group beneficial."
Bob and Helen said of our Carson City support group:
"...The bottom line for us is that just being with other ALS patients and their families provides the opportunity to hear what others are experiencing. Even though we haven't had the particular experience yet, it helps to get a heads-up about what may be coming. It helps to reduce the 'unknowns'. We also find that presentations by different providers - wheelchairs, text-to-speech devices, ventilators, physical therapists, speech pathologists, etc - provide insights into what kind of help is out there. Most of us are in this type of a situation for the first time and learning what kind of help is out there on your own is a daunting task: you don't know what you don't know!"