ALS Ice Bucket Challenge Progress

 

TeamCurtis4aCure Transportation Program

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TeamCurtis4aCure was created after Chris Curtis, a Las Vegas native, was diagnosed with Amyotrophic Lateral Sclerosis (ALS) in 2014. Chris was a prominent attorney and an active outdoors man prior to the diagnosis, enjoying activities including: off-road racing, running, hiking and climbing, mountain biking, backpacking, skiing, hunting and fishing. Now that Chris can no longer do these activities he focuses his energy on enjoying life with family and friends and advocating for ALS. TeamCurtis4aCure’s guiding principal is #DoWhatYouCanDo and revolves around the idea of living life to the fullest every day.

The TeamCurtis4aCure Transportation Program was developed to provide a much needed resource for patients with ALS. Many patients do not have access to wheelchair accessible transportation and thus become trapped in their homes. In 2018, The ALS Association Nevada Chapter created the TeamCurtis4aCure Transportation Program. The program was established through a grant from the Christopher Reeve Foundation and seed money donated by TeamCurtis4aCure. The grant from the Christopher Reeve Foundation expires June 2020. TeamCurtis4aCure is seeking funding to continue supporting the transportation program. The TeamCurtis4aCure Transportation Program provides patients the use of wheelchair-accessible transportation on demand for free. Patients use the service for medical and non-medical trips including: monthly multidisciplinary ALS clinics, restaurant visits, museum trips, art and music events, movies, sporting events, and family events

Program Achievements

- Carol was diagnosed with ALS and moved to Mesquite so her mother could care for her. She had progressed to the point where she needed to be moved to a care facility in Las Vegas, but her 87-year-old mother couldn't drive to Las Vegas to see her daughter. The TeamCurtis4aCure Transportation Program was able to pay for a shuttle to bring her to Las Vegas and a Lyft to take her to the care facility to visit her daughter. Carol's mother was able to visit her twice a month at no cost before she passed away 6 months later.

- Brian was able to take a 2-week trip to California and create great memories with his parents because they were able to rent a van through the transportation program. This was the first time he had been able to travel since his diagnosis in 2013.

- Peggy was able to go see her granddaughter perform in her first ballet recital because her husband obtained a wheelchair accessible van with the help of the TeamCurtis4aCure Transportation Program. Sadly, Peggy died just 66 days later.

- Aida lives in Fallon, a rural Nevada community that is 62 miles from our nearest support group. Aida hadn’t seen or spoken to anyone else living with ALS and desperately wanted to attend a support group and feel that she is part of a community of people who understand what she is going through. The TeamCurtis4aCure Transportation Program was able to provide transportation for her to attend the meeting. She traveled an hour and fifteen minutes each way and now feels that there are others in her condition that she can talk to, share with, and learn from.

- Ted was having family travel to Las Vegas to see him and he wanted to be able to see the sights with them. Thanks to the e was able to use the van to visit the Las Vegas Strip with his family. Sadly, Ted passed away two months after the trip. His wife was thankful they could spend time out of the house with their family instead of having Ted just sit at home.

- Daniel wanted to attend his daughter’s wedding in California. The TeamCurtis4aCure Transportation Program provided a van rental for him and his caregiver so they could be there for the momentous occasion.

These are just a few stories from the 35 trips and 144 days people with ALS were able to travel through the TeamCurtis4aCure Transportation Program in 2019. Nevadans living with ALS were able to spend time with family and friends or attend appointments that wouldn't have been possible otherwise.  


#DoWhatYOUCanDo