ALS Ice Bucket Challenge Progress

 

 

Nevada Chapter Support Groups

Our chapter is proud to offer monthly support groups statewide. Support group meetings can be an educational gathering, a safe place to express emotions, or a forum to share experiences and information. People with ALS, caregivers, family members, and friends are welcome to attend to give and take the wisdom and experience that comes from living with a devastating illness.

On learning of his ALS diagnosis and attending our Henderson support group, Brian said:

"After the full spectrum of emotions you would expect, I realized that I could basically either give up and withdraw or fight and make the most of the time I have left...The support groups not only help to show you're not alone but are a great place to get information that you might not otherwise easily find on your own. I think on the the reasons I'm still here going on 6 years is because I've had people to lean on including the ALS Association staff, as well as the people I've met a the support group. I know that dealing with this disease, even small things can be an ordeal, but I really do believe that you'll find attending the support group beneficial."

Bob and Helen said of our Carson City support group:

"...The bottom line for us is that just being with other ALS patients and their families provides the opportunity to hear what others are experiencing. Even though we haven't had the particular experience yet, it helps to get a heads-up about what may be coming. It helps to reduce the 'unknowns'. We also find that presentations by different providers - wheelchairs, text-to-speech devices, ventilators, physical therapists, speech pathologists, etc - provide insights into what kind of help is out there. Most of us are in this type of a situation for the first time and learning what kind of help is out there on your own is a daunting task: you don't know what you don't know!"

The Nevada Chapter offers monthly support groups for people with ALS and caregivers throughout the state. For more information or to request a topic for discussion or presentation, call our office toll-free at 833-335-1909.

All caregivers are welcome to join us for our monthly Virtual Caregiver Support Groups. Contact your Care Services Coordinator for online conference details.

ALS Association Nevada Chapter Support Groups

Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness.  Support groups are open to people with ALS, caregivers, family members, friends, or coworkers. Here is a list of some things ALS support groups provide:

·       A forum to share information and practical experience, whether it’s learning how to improve physical function, discussing new drug trials, or experiencing the latest augmentative technologies all geared to helping you live more fully with the disease.

·       A safe place to allow your emotions to speak for you.  The group offers an unparalleled opportunity to learn how other people cope with various problems similar to yours, to see that patients and family members are not completely unique, and that others experience the same type of feelings and emotions about the disease as you do.

·       An educational gathering spot where speakers and caregivers address subjects of major interest and exchange; how to incorporate physical and occupational therapy into your life; how to counteract problems in swallowing and chewing; safeguards that can help you avoid pulmonary complications; and ways of coping with depression and caregiver “burnout”, among many other topics.

·       A place to witness firsthand the constant miracle of people continuing to live productive, fulfilling lives in spite of having ALS.
                   -Source: Forbes Norris ALS Research Center

 

“The support groups not only help to show you're not alone but are a great place to get information that you might not otherwise easily find on your own. I think one of the reasons I'm still here going on 6 years is because I've had people to lean on including the ALS Association staff, as well as the people I've met at the support group.” – Brian

 

Northern Nevada – Carson City
Fourth Wednesday of every month at 1:00pm 
The Lodge Assisted Living
2200 E Long St, Carson City, NV 89706 

Northern Nevada – Reno
Fourth Thursday of every month at 12:30pm 
Infinity Lounge
5538 Longley Ln, Reno, NV 89511 

Southern Nevada – Henderson
Fourth Tuesday of every month at 12:30pm 
Barbara Greenspun WomensCare Center of Excellence
2651 Paseo Verde Pkwy, Ste 180, Henderson, NV 89074 

Southern Nevada – Summerlin
Second Wednesday of every month at 2:30pm 
Mountainview Presbyterian Church
8601 Del Webb Blvd, Las Vegas, NV 89134 (enter through office)

 

For more information, directions, or to request a topic for discussion or presentation, contact Taryn Joyner at 702-768-2329 or taryn@alsanv.org.