We are committed to improving the lives of people afflicted with ALS (amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease), as well as serving their families and caregivers, throughout Nevada. Founded in 1998, the organization’s board of directors and executive director raise funds to support care services, caregiver programs and education. All funds raised are used solely for people with ALS and their caregivers living in the state of Nevada.
Our primary goals are to:
- Help those living with ALS in Nevada and family/caregivers live as full and normal a life as possible.
- Aid people living ALS through the loan of equipment or by other means.
- Serve as a liaison, linking people to available resources and information.
- Educate and inform the public as to the nature of ALS.
- Encourage scientific research for the prevention, alleviation, care, treatment and cure of ALS, as well as increase awareness of ALS at all levels of government in an effort to expand government support for research and initiate programs to provide accessible and affordable treatments and care.
Some of the services and programs we offer to people living with ALS and their families include:
- Referrals to local multidisciplinary ALS clinics, where patients are provided with assistance from neurologists, speech, occupational, and respiratory therapists, social workers, and dietitians
- Monthly support groups in Northern and Southern Nevada
- Non-medical respite program to give caregivers a break from caring for their loved one with ALS
- TeamCurtis4aCure Transportation Program to provide the use of wheelchair-accessible transportation
- Home visits by licensed personnel to improve the quality of life through education, support, and compassionate care
- Medical equipment loan program to provide aids for daily living and sustain health
- Assistance and resources to help navigate Medicare eligibility and enrollment coverage that impact access to care for people living with ALS and their families
- Assistance with registering to the National ALS Registry, which identifies ALS cases in the U.S. and collects vital information that may be used to improve care and prevent the disease in the future